Rare Disease Day

Rare Disease Day
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This Feb twenty-eight is Rare Disease Day. With many such things occurring worldwide around us, it’s straightforward to place vital things like health. ThatThat’s on the Day of Judgement of Feb every year. We tend to mark our calendars to bring awareness to rare diseases. A median of one in twenty folks endures a rare sickness at least once in their period. Few of them see any sign of a cure. The goal of Rare Disease Day is to boost data amongst the final public of rare diseases while encouraging researchers and decision-makers to deal with the wants of these living with rare diseases. If you are interested in getting more information, stay tuned with us until the end.

Rare Disease Day History

Founded by the ECU Organization for Rare Diseases, the primary Rare Disease Day was celebrated in 2008 on February 29. A “rare” da” e happens just one occasion every four years. Since then, Rare Sick Day has taken place on the Day of Judgement of Feb; a month thought to have a rare variety of days.

The day is the command to lift awareness for rare diseases and improve access to treatment and medical illustration for people and their families. Treatment for several rare diseases is lacking, as square measure the social networks to support people with rare diseases and their families. Individuals who are observant of Rare Disease Day participate in walks and press conferences, organize fundraisers, write en bloc to government representatives, and hold events, gatherings, and campaigns.

The day conjointly includes AN open session of the ECU Parliament dedicated explicitly to discussing policy problems concerning rare diseases. The times leading up to Rare Sick Day embody different policy-related events in varied locations, like a reception within the parliament wherever policymakers meet with people with rare diseases to debate problems like equal access and convenience of interference, diagnosis, treatment, and rehabilitation.

Since its start, there have been thousands of events stemming from races and walks to art exhibits and workshops. These events measure command to bring attention to policymakers and encourage amendment within the community. Historical monuments like the theater and the New York State building have taken steps in causation messages of commonality today by lighting up with the enduring pink, blue, and inexperienced colors, providing hope for millions worldwide.

Rare Disease Day FAQs

What is a rare disease?

A sickness outlined as rare is once it affects fewer than one in a pair of 1000 people. However, there square over three hundred million folks living with one or a lot of over half-dozen 000 known rare diseases worldwide.

What color is a Rare Disease Day?

While the colors most used for Rare Disease Day measure pink, blue, and green, regionally worn symbols might vary.

What is a disease?

Sickness could be a disorder of structure or operation in an exceedingly human, animal, or plant that’s a right away result of physical injury.

Rare Disease Day Activities

Spread the word

Share posts regarding Rare Disease Day on social media and encourage friends to lift awareness for rare diseases.

Volunteer

Every year, thousands of events are organized worldwide throughout Feb to mark the occasion of Rare Disease Day. Patient organizations, health care professionals, researchers, policymakers, and different members of the rare sickness community organize Rare Disease Day events. Notice events close to you, or move to the website and begin your own!

Rare Disease Day Activities
Rare Disease Day Activities

Tell Your Story

Be a part of Rare Sick Day by sharing your story with others and causation a message of solidarity! you can sketch up your account and conjointly submit photos or a video testimonial to rarediseaseday.org

Facts regarding Rare Disease Day

Facts regarding Rare Disease Day
Facts regarding Rare Disease Day

1 in 10

1 in one0 folks suffers from rare diseases within the U.S.

It, for the most part, affects youngsters

50% of these littered with rare diseases square measure youngsters

Global Scale

Rare diseases affect over three hundred million folks worldwide.

Finding Support

Half of the rare diseases affect folks don don’t have a foundation or analysis support cluster.

The wide variety

95% of rare diseases lack AN FDA-approved treatment.

Why do we tend to Love Rare Disease Day?

Raising awareness

Rare Disease Day improves data amongst the final public of rare diseases, encouraging researchers and decision-makers to deal with the wants of those living with rare diseases.

Finding cures

Most rare diseases haven’t found the cure, and plenty goes unknown. By transferring awareness, we tend to open up hearts and minds to the chance of finding a cure.

Saving lives

Significant advances in rare sickness policy may be seen worldwide throughout the years and have helped improve the standard of life for several worldwide.

If you are looking for more information, you must read here more. International Polar Bear Day

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